![]() Keep a diary of your progress or get yourself a Jawbone, Fitbit or some other tracking devise.Īnd finally, go out and tell people of your success and visit a forum and leave feedback even when you don't have the time, because other people need to know that there are success stories. Stay away from chocolate and sweets after 5pm. There are a few rules that I feel are key to success.ĭon't drink anything put small amounts of water. ago Narcolepsy & Cataplexy One of the 5 tetrad symptoms of Type I Narcolepsy (with Cataplexy) and one of the 4 tetrad symptoms of Type II Narcolepsy (without Cataplexy is: Sleep disruption/fragmentation (difficulty sleeping, just like we have difficulty staying awake, it goes both directions). Xyrem is a prescription drug used for narcolepsy. The night is no longer a continues row of dreams, but passes in the blink of an eye. The cause of primary narcolepsy without cataplexy is unclear, as people with type 2 tend to have a typical hypocretin level. Normally I wake a few minutes before the alarm goes off and I manage to get through the day without coffee (impossible a few month ago) and only 200mg of Modafinil. 2-3 hours later I wake up by myself and take the second dose. I go to bed and take me dose and after 15 minutes fall asleep. Both my doctor and the central pharmacy were very helpfully, but in the end it is oneself who has to get through it.Īfter 5 days I started to experience what I most of the world would call proper sleep. In the patients with narcolepsy without cataplexy, sleep latency was significantly increased for both the sodium oxybate (P0.007) and sodium oxybate plus modafinil group (P<0.001). I was very nervous and the first few nights and days were difficult and fairly unpleasant as my body didn't appreciate the sodium oxybate. Discover SUNOSI (solriamfetol), a prescription treatment to improve wakefulness for excessive daytime sleepiness (EDS) due to obstructive sleep apnea (OSA). I had like everyone else visited forums and was very concerned about the lack of success stories and of course the possible side effects.īy the beginning of 2015 I came to the realization that I had not only completely exhausted myself but also all alternative routes of fighting my narcolepsy and therefore decided to try Xyrem. Despite a clear diagnoses and despite struggling with this disorder for close to 37 years (first symptoms appeared when I was 5 years old in form of hypnagogic hallucinations and cataplexy) I was resisting my doctors recommend course of action which included first and foremost the use of Xyrem. ![]() "I was diagnosed with Narcolepsy in the beginning of 2014 at the age of 42.
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